We live every day "in between" appointments.
What we want is to live well, to be present for the people we love. But while we're busy living, the quiet patterns can slip past us: a symptom that slowly drifts, a change that builds week over week. I personally lived with anemia for 2 months without knowing why I was tired. I needed, and we need, a companion that can help us observe what our days have been telling us, and even give us the tools to ask for help from our caregivers and doctors.
— John Grudnowski, ET Patient & LED Founder
3–6
months between check-ins for many patients managing cancer over time.
For many patients managing cancer over time, care involves periodic check-ins spaced months apart, across MPN, CLL watch-and-wait, active surveillance, and survivorship.
53%
of MPN patients rank slowing or delaying progression as their #1 management goal. Live Every Day helps surface the patterns that may be predictive of progression.
MPN Research Foundation · 2026 Patient Unmet Needs Assessment
63%
of MPN patients disagree that others understand what they are going through. Live Every Day's Circle helps the people who love you see what you're navigating.
MPN Research Foundation · 2026 Patient Unmet Needs Assessment
3 of 5
priority unmet needs MPN Research Foundation named for 2026 are tied to symptoms: persistent symptom burden led by fatigue, limited use of structured monitoring tools, and gaps in understanding disease progression.
MPN Research Foundation · 2026 Patient Unmet Needs Assessment