Live Every Day

The patient built, AI supported, companion for navigating rare disease types.

Built to grow with you.

For the millions of us living with chronic or rare cancers.

Launching with the MPN community

Join the pilot →
✓
Tuned for each disease

Curated symptom lists and observations, learned with patients.

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Guided by experts

Working alongside patient advocacy organizations and clinicians pioneering each rare disease, starting with MPN Research Foundation, and informed by patient reviewers with lived experience who provided critical feedback.

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It learns you

Our symptoms, such as fatigue, can stem from our medication or our disease, but also from sleep, weather, and a busy life. Know your patterns.

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Be your best advocate

Bring months, even years, of data to every appointment, so your care team can give you the care you deserve. For life.

Built by a patient. For all of us. Free forever. HIPAA compliant.

Join the MPN pilot → See how it works

Partnering with leading foundations, doctors, and researchers to bring clinical-level depth to every condition.

Launch partner MPN Research Foundation
MPN · Launching first
Essential Thrombocythemia, Polycythemia Vera & Myelofibrosis
MPN-10 symptoms, CBC trends, and every day in between — the full longitudinal picture, every hematologist visit.
CLL · Coming soon
Chronic Lymphocytic Leukemia & Indolent Lymphoma
Track ALC trends, lymphocyte doubling time, and B-symptoms across years of watch-and-wait surveillance.
Prostate · Coming soon
Prostate Cancer: Active Surveillance
PSA trends, biopsies, and active surveillance — the full longitudinal picture, every visit.
Post-treatment · Coming soon
After Treatment: The Watchful Window
Treatment is over. The monitoring isn't. Real tools for the watchful window.
Thyroid · Coming soon
Thyroid Cancer & Early-Stage Breast Cancer
Years of TSH, thyroglobulin, and scans — long-term monitoring that deserves real insight.
Expanding
More conditions on the roadmap
Building condition by condition — each with its own validated instrument and clinical advisor.

We live every day "in between" appointments.

What we want is to live well, to be present for the people we love. But while we're busy living, the quiet patterns can slip past us: a symptom that slowly drifts, a change that builds week over week. I personally lived with anemia for 2 months without knowing why I was tired. I needed, and we need, a companion that can help us observe what our days have been telling us, and even give us the tools to ask for help from our caregivers and doctors.

— John Grudnowski, ET Patient & LED Founder

3–6
months between check-ins for many patients managing cancer over time.
For many patients managing cancer over time, care involves periodic check-ins spaced months apart, across MPN, CLL watch-and-wait, active surveillance, and survivorship.
53%
of MPN patients rank slowing or delaying progression as their #1 management goal. Live Every Day helps surface the patterns that may be predictive of progression.
MPN Research Foundation · 2026 Patient Unmet Needs Assessment
63%
of MPN patients disagree that others understand what they are going through. Live Every Day's Circle helps the people who love you see what you're navigating.
MPN Research Foundation · 2026 Patient Unmet Needs Assessment
3 of 5
priority unmet needs MPN Research Foundation named for 2026 are tied to symptoms: persistent symptom burden led by fatigue, limited use of structured monitoring tools, and gaps in understanding disease progression.
MPN Research Foundation · 2026 Patient Unmet Needs Assessment

The most important person in your care team is you.

Step 1
Symptom Tracking
A guided check-in, built on the clinical symptom tools for your disease.
Step 2
Gain Observations
See the patterns across your symptoms, your sleep, and your daily life.
Step 3
Caregiver Access
Bring your circle and your #1 champion into how you're really doing.
Step 4
Be Prepared
Walk into your appointment with a brief, and the questions that matter.

Built from the heart. To help us live every day.

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Free. Always.
No subscription. No paywall. Managing a serious diagnosis is expensive enough.
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Your data. Your choice.
Always opt-in. Always reversible. Nothing shared without your explicit permission.
✓
HIPAA compliant.
Built to the same privacy framework that governs your medical records.
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Built by patients.
Founded by an ET patient who needed this and couldn't find it. In concert with all of us who do.

By working with our own data, in the future we can help our care teams know when we need support, even between appointments.

Live Every Day gives care teams the tools to manage their entire patient panel, not just the fifteen minutes they have in the room. When something changes, they know. And they can act.

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Full patient panel: one view, sorted by who needs the most attention
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Real-time alerts when it matters, between appointments
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Walk into every appointment already informed
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Built for rural and non-specialist care
Live Every Day · Care Team Dashboard
WS
Dr. Wolanskyj-Spinner · Hematology · Mayo Clinic
2 patients need attention: John Grudnowski and Robert Kim have flagged symptom trends today. Review before their upcoming appointments.
Total patients
34
on Live Every Day
Checked in today
28
82% completion
Need attention
2
Flagged today
Watch
5
Trending, monitor
Appts today
3
John G · Thu · Fri
Patient Status MPN-10 Fatigue Last check-in Next appt Flags 6-week trend
John Grudnowski
ET · JAK2+ · Dx 2023
● Attention
38 ↑+9 8/10 Apr 13 · 1d ago Apr 14 · 1d
Fatigue↑PLT↑
Robert Kim
MF · CALR+ · Dx 2021
● Watch
31 ↑+5 7/10 Apr 12 · 2d ago Jun 8 · 7wks
Sweats↑
Maria Chen
PV · JAK2+ · Dx 2019
● Stable
18 4/10 Apr 14 · today May 2 · 2.5wks
Consistent
Susan Park
ET · MPL+ · Dx 2022
● Stable
14 ↓ 3/10 Apr 13 · 1d ago Apr 28 · 2 check-inss
Improving
Showing 4 of 34 patients · sorted by trend View all patients →

Care Team Dashboard, available to hematology and oncology practices

Live Every Day

"If any part of this is familiar to you, we'd be honored to be part of your journey."

John Grudnowski  ·  ET Patient, Founder

Download on the App StoreComing soon Join the Android waitlistComing soon
MPN pilot

Express interest in the pilot

Thanks for your interest — we'd love your support through the pilot, and we appreciate you. The expectation is that you'd use the Live Every Day companion at least once a week to log symptoms, and that you'd be willing to respond to a short survey after months 1 and 2 of the pilot and at its conclusion. Your time will no doubt help us build this more effectively for all of us. Thank you.

Below, please tell us a bit about you and we'll be in touch shortly.

Or email us directly at info@liveeveryday.health